Cystic Fibrosis (RN) Nurse Prog Coordinator

About the Job

General Summary of Position

The cystic fibrosis nurse program coordinator works collaboratively with physicians and members of the CF care team to provide state of the art comprehensive patient care education and research for patients with cystic fibrosis. The nurse program coordinator is a team leader involved in all aspects of CF care and management.

Primary Duties and Responsibilities

• Coordinates intake triage and follow-up for new adult CF patients to the program and new adult CF diagnoses including genetic testing notifications
• Oversees referral processes and ensures timely evaluation by CF specialists including integration of trainees (e.g. pulmonary fellows & internal medicine residents)
• Provides direct patient care and education during clinic visits; supports adherence to treatment plans and long-term disease management
• Serves as a liaison for inpatient-outpatient transitions promoting continuity of care and effective communication across settings
• Leads and/or coordinates CF-specific education for healthcare professionals across the institution
• Develops and maintains educational materials and resources for patients families and staff in alignment with CF Foundation guidelines
• Mentors and supports CF team members in professional development and accountability
• Provides outreach and education to schools community providers and other external stakeholders regarding CF care
• Participates in and represent the program at local regional and national educational events including the North American Cystic Fibrosis Conference (NACFC)
• Organizes the annual CF Family Education Event and promotes CF awareness through community engagement activities
• Champion infection prevention and control practices specific to CF across all care settings
• Stays current with CF research and assist in integrating new findings into clinical protocols and team education
• Supports clinical research activities including patient recruitment and study coordination in compliance with institutional requirements
• Leads quality improvement (QI) initiatives in partnership with the CF Center Director using data to identify and address gaps in care
• Collaborates with other CF centers and the CF Foundation on shared QI projects and interventions
• Promotes meaningful involvement of patients and families in center-based initiatives including mentorship and advisory roles
• Ensures dissemination of QI data and outcomes to internal and external stakeholders
• Contributes to the strategic development of the CF program aligned with institutional missions of leadership clinical excellence education and research
• Represents nursing and the CF program in interdisciplinary planning and organizational initiatives

Minimal Qualifications

Education

• Bachelor's degree Bachelor Science in Nursing required
• Master's degree Masters in Nursing preferred

Experience

• 8-10 years Nursing required
• Experience in pulmonary care chronic disease management or pediatric/adult CF care preferred

Licenses and Certifications

• RN - Registered Nurse - State Licensure and/or Compact State Licensure Washington DC required

This position has a hiring range of

USD $35.68 - USD $64.71 /Hr.